LAM Action Annual Meeting Saturday 11th June 2005

General discussions

Moderator: Moderators

siteadmin
Site Admin
Posts: 16
Joined: Mon May 30, 2005 3:21 pm

LAM Action Annual Meeting Saturday 11th June 2005

Postby siteadmin » Thu Jun 09, 2005 7:53 pm

TO BE HELD AT UNIVERSITY OF NOTTINGHAM, UNITED KINGDOM


9.30-10.30 REGISTRATION, COFFEE AND BISCUITS

10.30 BUSINESS MEETING

11.05 LAM ACTION NEWS

11.15 COPING WITH PANIC ATTACKS

11.30 RAPAMAYCIN TRIAL

12.00 PR SUMMARY

12.30 LUNCH

2.15 LAM RESEARCH NEWS

2.45 COPING WITH BREATGLESSNESS

3.15 Q&A SESSION

3.45 FLYING WITH LAM

4.00 TEA AND CLOSE OF MEETING

siteadmin
Site Admin
Posts: 16
Joined: Mon May 30, 2005 3:21 pm

Postby siteadmin » Sun Jun 12, 2005 9:50 am

Yesturdays LAM Action was a success, I was taken aback by all the LAM Patients I meet and their corouge to say their stories to those of us new in the circle of LAM.

It was the first meeting I have been too and meeting everyone an interacting about a disease my girlfriend has brought it home closer to me.

Alot was said and question/answers heard, stories of individuals and research currently in progress.

It was a wonderfull event and never seemed enough time, but walked away with alot of information to digest and pass on.


Return to “Talk about LAM”

Who is online

Users browsing this forum: No registered users and 1 guest